As of a little over an hour or so ago, Sam was extubated. No more breathing tube!
I want to say two things before I try to get some much-needed sleep:
1) Thank you all for your thoughts today! I'm always amazed by how inspiring Sam's story is to others; he's an amazing kid, and I know he would appreciate all the good thoughts people sent his way today.
2) I'm also amazed at how quickly long-unneeded habits can return. I find myself repeating the habits--habits that I'd forgotten I'd even developed--that got us through this the first time around, over four years ago. We set Sam's room up identically; we set the "sleep room" alarm reminding us to call for a room each night (turns out I still had the phone number in my contacts list); we follow the same patterns of shift-taking so that both Kristin and I can each sneak in bits of rest throughout the day; we practice tunnel-vision, almost not even seeing the other patients who, while we care about them, can't earn our attention in this moment. It's remarkable how quickly we remember how to endure.